Thanks everyone for subscribing and tuning in to Breast Cancer Nirvana this year!
Breast Cancer Nirvana was born in July 2011. In retrospect, that was quite a feat as in:
- June, I had two surgeries including a mastectomy and breast reconstruction;
- August, I moved house and;
- September, I started three months of chemotherapy plus a year of Herceptin.
The website has been therapy for me in traveling through breast cancer again. But mostly, I hope that readers are getting something from the site…learning, inspiration, reality checks, information and support.
Breast Cancer Nirvana came out of a calling to both set up a website and help others, and followed a spark of synchronicity when I saw an article about setting up a website (an interview with Serena Star Leonard) in June 2011. Serena is a Kiwi living in Australia and one of her passions is passing on all she knows to others setting up websites.
I could not have created this website without the support of others including friends and family who helped with brainstorming ideas and simply being supportive through the breast cancer journey. A big thanks to Serena for all your support and ideas and Thanks Tessa for the beautiful logo design (also a quick note to say that Serena is running her last website course in January if you are interested in creating a website of your own http://www.retireyoung.com.au/the-retire-young-course?aff=nirvana).
Please let me know if there is anything you like or dislike about the site and in particular, any topics you would like covered in the future. Your feedback is really valuable to me.
And on to the ‘most’ important blog: about Cancer and Finance. I asked a friend, financial advisor, author and fellow breast cancer survivor – Alison Renfrew – to write an article about Cancer and Finance. Here is her article. Thanks Alison!
THE PROBLEM WITH BEING POSITIVE (ABOUT CANCER, WINE, OBESITY AND MONEY)
Welcome to Andrea’s website. She’s a fantastic woman and is coping very well. She motivates me with her positivity. I met Andrea when we were on chemotherapy at the same time in 2007. Ugh! My memories of that time were about fearfulness and illness while at the same time I made friends with new wonderfully supportive people. Today I’m grateful for the experience but it’s definitely one that I don’t want another of.
My cancer journey
Sometimes during chemo I felt so sick. Once I was trembling in the shower and started to think that it would be better not to take the chemo because I thought it was killing me. The district nurse said to double the medication I was taking to lessen the effects of the steroids that were supposed to lessen the effects of the chemo. When I doubled that medication I felt profoundly worse and that’s when we learned that I was one of the many who reacted badly to maxillon. Stopping that drug was really helpful. Towards the end of my chemo I stopped all drugs. I preferred to go cold turkey than take the drugs because I never had one that didn’t make me feel awful. It’s not just the chemo that made me feel awful. It was also the other ones I was given afterwards as well.
Cover Your Breasts
It was good to have recorded my experiences at that time. Today, I had forgotten the name of the drug (maxillon) so I looked it up in the book I wrote Cover Your Breasts. Now that’s a great book. It’s factual and covers the breast cancer journey from diagnosis through to breast reconstruction.
Five years on and life is great. Neither my breast surgeon, nor the radiographer, have been able to detect any cancer in me and I hope it stays that way. I’m writing a new book now. It’s about obesity. I’m a specialist on that topic as well (decades of personal research and experience). My cancer and my obesity were inextricably linked. A friend of mine is a pathologist. That’s a medical doctor who specialises in reading cancer biopsies. She told me that if there was one thing I could do to save my life it was to lose weight. The other thing is to drink less alcohol. Preferably none, but while travelling the parallel universe we learn that it’s pretty dumb to give up everything we love. What’s the point? Just do things in moderation.
Alcohol and breast cancer
New Zealand makes great wines. Sadly, there is very little publicity about the effect that alcohol has on us. Breast cancer rates are increasing and young women are drinking a lot more than they used to. I suspect one day that alcohol will be regarded as a drug as harmful as cigarette smoking. Many women are unable to break alcohol down properly. Acetaldehyde ends up in breast tissue and sometimes the breast cells eventually become cancerous. It’s very sad that so few women are aware of the association between alcohol, obesity and cancer.
The purpose of this column was to talk about money and the importance of having a decent life insurance programme in place. Last week I was forwarded an e-mail from a woman call Natalie Murphy. Her website is www.helpnat.com. Natalie has stage 4 cancer. She is terminally ill and will be leaving a gorgeous little boy and a devoted husband behind. This is tragic.
Natalie describes her journey in detail and I connected with it. Her treatment was very similar to mine. Bloody awful. I know just what she was going through. The only difference was that I was ‘lucky’ and Natalie wasn’t.
Natalie’s website invites you to make a donation to support her son and husband who is only working part time so that he can spend more time caring for her. It would be so stressful to know you are terminally ill and also know the financial devastation that your illness is causing your family.
It doesn’t have to be this way.
Why didn’t Natalie have trauma and life insurance? She is married to a wonderful man and has a son. Did they ever think of having life insurance? Did they ever talk with an insurance adviser? Did they have a conversation about insurance and decide that because they were well and healthy they didn’t need any and it was better to invest their money on their mortgage?
I have no idea.
I have seen several situations like Natalie’s over the years and I always wonder if they never knew about how to protect their families or if they had such a positive outlook on life they knew they would never have a need for insurance. How had they managed to escape from having an interview with an insurance broker?
In 1983 after I completed an insurance training course my friends said I had been brainwashed. I was speaking with far too much enthusiasm about life insurance. It was created to protect widows and children. Well, 28 years later, if it’s brainwashing I’m proud of it. Insurance makes a wonderful difference to someone with cancer.
The last thing you would want to do when you are seriously ill would be to figure out how to raise funds to pay for your medication. In Natalie’s case she had been ‘stuffed around’ a bit too much in the public health system. If she had had private health insurance she would have received her treatment much faster and sometimes this can make a difference between life and death. Statistically there is a 1% likelihood of cancer travelling from the breast every week. The sooner the tumour is removed the better. When I was diagnosed I had a mastectomy a week later. I had private health insurance and saw the specialists very quickly. Waiting is cruel at that time.
This column is not about whether or not we should have private health insurance and if we did surely the Government could make our premiums tax deductible given we are reducing the costs of the public health system. It’s the simple fact that our health system has inefficiencies and too many people need to use it. Kiwis do not want to pay prohibitive amounts of tax, like 70 cents in the dollar, in exchange for a welfare system that provides excellent care for everyone. It’s up to us to fund the care we need.
If Natalie had had life insurance she would have peace of mind that her husband and son would be financially protected. A young woman died in Christchurch last year. She was only 28. Her breast cancer had moved to her brain. She left a son and a husband just like Natalie. She also left them in a brand new debt free home.
When you have life insurance a terminal illness benefit can be paid out. This means that when a medical specialist says you are most likely to die within 12 months the life insurance will be paid out while you are still alive. The young woman in Christchurch used that money to build a home for her loved ones. You could also use the money to take your whole family for a wonderful holiday, say a cruise. You can do a lot more when you have insurance.
A friend/client is booked to have a mastectomy in January and then she will start chemotherapy. She has income protection insurance which means she has peace of mind about her income continuing whether or not her employment will continue. She is talking about where she will travel in Europe after her chemotherapy. She also has health insurance so she can have the treatment she chooses to have when she wants it rather than being told what to do at a time convenient to others not necessarily her.
Two weeks after my cancer diagnosis a trauma payment was paid into my bank account. How did we spend the money? Paying off or reducing the mortgage? That’s one option. The first thing we did was purchase a ride on lawnmower. Then some lovely diamond earrings and just before chemotherapy started we booked a Pacific cruise.
Money can’t make you happy
They say money doesn’t make you happy but I think only poor people say that. If you are ill with cancer you may as well be financially secure and enjoy yourself by being pampered, going shopping and travelling.
If I had had more trauma cover I probably would have gone to a retreat like The Golden Door in Australia where you spend about 8 days being seriously pampered. Massages, yoga, facials, health food, meditation etc. I would have gone with my husband but it seemed just a tad out of my comfort zone. Insurance for me was fairly costly because I was 52 when I was diagnosed. That’s why I didn’t have as much trauma cover as I should have. Ideally I would have had enough to clear the debt on our investment mortgages and pay for medication that wasn’t available on our public health system and travel to a specialist in another country if I needed to (I didn’t) and also go shopping (I needed that, had it and I shopped).
Is it expensive? I don’t think so. A 35 year old non-smoking woman would only pay $71.67 per month for $500,000 of life insurance that included $300,000 of trauma cover. Imagine how useful that money would be if she was terminally ill with cancer. Pay off the mortgage of say $350,000 and have $150,000 left to go shopping with (example only). If she was like me only having a mastectomy and chemotherapy she would be paid a trauma benefit of $300,000. The money is very very useful.
Sometimes people say they can’t afford to have insurance. If you can’t afford it you can’t afford not to have it. A multi-millionaire like Bob Jones can probably manage quite well without insurance but for normal people like you and me (assuming you are normal :)) I think it’s essential. I have seen far too many people stress out when they are ill because they are so worried about how they will be able to continue to meet their financial commitments.
The only time you can get insurance is when you’re healthy. The time when you cannot imagine ever being ill is the time you need to apply for insurance. You would be surprised how many people contact me after they have been diagnosed with a serious illness. You can’t insure your house after it has burned down and you can’t insure your life after you have been diagnosed with cancer.
If you would like an obligation free insurance quote please call me on 0800 593 6737 (0800 Lyfords).
This column was written by Alison Renfrew; breast cancer survivor, author of Cover Your Breasts, Authorised Financial Adviser.
 Today it’s there to protect you first. To protect your income and pay for things you need if you suffer a serious illness. Then its there to protect widows, widowers, and children.
 Money doesn’t make you happy but it’s way up there with oxygen.
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